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“I was nine when I had my first seizure. It was a hot summer morning when I awoke in my bunk bed in rural New Hampshire–I was spending the week at my first ever sleep away camp. My cabin mates swarmed around the bed as my eyes heavily opened and shut when I heard the…

“I guess you could say I wear a lot of hats – daughter, sister, fiancée, gamer, cat mom, and thrown into the mix is nocturnal epileptic. However, I don’t let that define me. It has meant that at some points in my life I’ve had to do things differently. I had to pass up sleepover…

“When you’re a kid you get asked the same question by everyone you meet ‘What do you want to be when you grow up?’ The answer is usually something exciting, an astronaut or acrobat, a popstar or professional dancer, figure skater or fashion designer. When I was 10 I wanted to be a professional soccer…

“I often hide behind a smile and say that I’m okay. I would rather know how someone else’s day has been. I often look like I have it all together with my hair pulled back and wearing earrings or some make-up. I’m usually never late. And I rarely call out sick. Even though I feel…

“I feel extremely lucky. I feel lucky that I get to walk my dog, go to the grocery store, watch the sunset, hang out with my friends, go to dinner with my family, and simply wake up in the morning, especially since there was a time where I wished I wouldn’t wake up. I didn’t…

manage you do chronic is the word they give you when you’ve run out of options“learn to live with it” they say, no cure – just pain managementso manage you do you push down the fear of what the future holds,the grief of what you’ve lost in the past you’ve had to grow up too fast  the…