Taylie

“I feel extremely lucky. I feel lucky that I get to walk my dog, go to the grocery store, watch the sunset, hang out with my friends, go to dinner with my family, and simply wake up in the morning, especially since there was a time where I wished I wouldn’t wake up. I didn’t want to deal with the things that came with waking. I didn’t want to deal with the cramps, body aches, chills, fatigue, bathroom anxiety, and everything else that went along with having severe ulcerative colitis. I was in so much pain every day, both physically and mentally. I felt alone and isolated with my disease, pulling away from my friends and family. I finally decided enough was enough and chose to get a total colectomy, leaving me with an ileostomy bag. I wanted to take back control of my life and start living again.

While this is not a path I would have chosen for myself, I feel lucky because it gave me a purpose in life. I decided to apply to nursing school to help those in similar situations, specifically people with ostomy bags. Living with an ostomy or any other medical device can be a very scary change, but it shouldn’t keep you from living your life. Instead, it should allow you to live it the way that you want to! While my life hasn’t gone the direction that I had planned, I feel lucky. I get to share my experiences, promote awareness, and help others with their journeys. I get to make more memories and I get to enjoy every little thing in life. Whenever you think that you ‘have to’ do something, just remember that you ‘get to.'”

Taylie

Similar Posts

  • Mireille

    “There are things I have to do that are hard to imagine my peers doing. Frequent lab work and speciality visits. Trips to the pharmacy for refills. Filling out my pill container for the week. Then there are the more intimate worries: do I feel sick because I didn’t get enough sleep? Why do my…

  • Ellie

    manage you do chronic is the word they give you when you’ve run out of options“learn to live with it” they say, no cure – just pain managementso manage you do you push down the fear of what the future holds,the grief of what you’ve lost in the past you’ve had to grow up too fast  the…

  • Eliana

    “At a very young age, I was diagnosed with MS, also known as multiple sclerosis. This is a disease that attacks the brain and spinal cord, that could potentially leave you paralyzed. It’s an incurable disease, so when I found out that I had it, I was extremely scared. When the doctor first told me…

  • Lauren

    “Looking back at my younger years with Crohn’s Disease, I can’t help but feel robbed. If I could go back and meet my childhood self I would hug her and tell her it would all be okay. Overall, my childhood was great! My parents were amazing and took us to all the fun places and…

  • Roberta

    “On June 16, 2021, I was diagnosed with stage 2 triple negative breast cancer in my right breast at the age of 44 years old. I had 3 opinions from UCLA, Providence in Santa Monica, and finally City of Hope. UCLA found the tumor, Providence removed the tumor, and City of Hope treated me with…

  • Holly

    “In May of 2008, I had just completed my first year of college and was back home for the summer. My parents had a delicious menu on deck to celebrate Memorial Day. I remember this because it was the last meal I would eat for two weeks. I woke up with an upset stomach and…