Ellie

manage you do

chronic is the word they give you when you’ve run out of options
“learn to live with it” they say, 
no cure – just pain management
so manage you do

you push down the fear of what the future holds,
the grief of what you’ve lost in the past 
you’ve had to grow up too fast 

the appointments, insurance battles, and phone calls
can’t afford to slip and fall 

so many lonely drives, silent cries 
pills and bills 
i wonder if i have enough will

fighting for accommodations, 
met with just another medical consultation 
i’m here, can’t you see me i want to scream
i thought you were on my team

but you smile and nod
because manage you do 

behind your laugh, there is a layer of grief 
always in pain, searching for relief 
but silently you take your meds
quietly flare in bed 

the weight of everything you’ve lost 
an unknowable, invisible cost

Ellie Chang

Similar Posts

  • Natalie

    “I live with anxiety, depression, and panic disorder. These are names of illnesses that are often carelessly thrown around, but my experience with them has been anything but fickle. My first official diagnosis was in January of 2019. I vividly remember going to bed one night, everything as it should have been. The next thing…

  • Meesa

    “I was 22 years old when I started testing for cancer. I was so young that reflecting back I realize how I didn’t even really know it at the time. Doctors would tell me let’s do this test, then this type of test, choosing very carefully in words what we were actually testing for. I…

  • Daniela

    “My story is of a girl who lost everything and is now gaining back more than she ever had.  I was fourteen when a traumatic event triggered my chronic illnesses. I started experiencing countless symptoms, mostly due to autonomic nervous system dysfunction. The worst symptom of all, was the extreme pain in my chest that…

  • Isabella

    “There is a really frightening sense of finality to chronic illness, the term ‘chronic’ seems to serve to soften the impact of the reality that an autoimmune disorder is something I will probably have until I die, that one day I woke up and spontaneously developed something that will stay with me for my entire…

  • Katerina

    “I often hide behind a smile and say that I’m okay. I would rather know how someone else’s day has been. I often look like I have it all together with my hair pulled back and wearing earrings or some make-up. I’m usually never late. And I rarely call out sick. Even though I feel…

  • Sergio

    “I was 35 years old when I was diagnosed with type 1 diabetes. When I found out, I thought my life was over. I was so scared. The first person I contacted was a good friend of mine. He calmed me down and explained to me that there is nothing I can do but to…