Ellie

manage you do

chronic is the word they give you when you’ve run out of options
“learn to live with it” they say, 
no cure – just pain management
so manage you do

you push down the fear of what the future holds,
the grief of what you’ve lost in the past 
you’ve had to grow up too fast 

the appointments, insurance battles, and phone calls
can’t afford to slip and fall 

so many lonely drives, silent cries 
pills and bills 
i wonder if i have enough will

fighting for accommodations, 
met with just another medical consultation 
i’m here, can’t you see me i want to scream
i thought you were on my team

but you smile and nod
because manage you do 

behind your laugh, there is a layer of grief 
always in pain, searching for relief 
but silently you take your meds
quietly flare in bed 

the weight of everything you’ve lost 
an unknowable, invisible cost

Ellie Chang

Similar Posts

  • Laura

    “I was nine when I had my first seizure. It was a hot summer morning when I awoke in my bunk bed in rural New Hampshire–I was spending the week at my first ever sleep away camp. My cabin mates swarmed around the bed as my eyes heavily opened and shut when I heard the…

  • Natalie

    “I live with anxiety, depression, and panic disorder. These are names of illnesses that are often carelessly thrown around, but my experience with them has been anything but fickle. My first official diagnosis was in January of 2019. I vividly remember going to bed one night, everything as it should have been. The next thing…

  • Marisa

    “I’m a forty-one-year-old disabled mother of three and pastor’s wife, currently undergoing chemotherapy for Lupus Vasculitis. I look in the mirror and wonder, ‘how did I get here so fast?’ The hours lying awake at night in pain; losing my ability to walk; the years of failed medications; doctors; hospital stays; ER visits; the specialists; the…

  • Mireille

    “There are things I have to do that are hard to imagine my peers doing. Frequent lab work and speciality visits. Trips to the pharmacy for refills. Filling out my pill container for the week. Then there are the more intimate worries: do I feel sick because I didn’t get enough sleep? Why do my…

  • Destinee

    Trigger Warning: This story includes topics of rape and sexual harassment. “I was diagnosed with severe generalized anxiety disorder, depression, and PTSD at the age of 19. In the year of 2016, when I thought that this would be the prime year of my life, I was raped by a man I knew from high…

  • Brittany

    “After years of praying for purpose, purpose surely came and it came in hot! In September of 2019, my whole life changed when I heard the words ‘You have multiple sclerosis’. I know this may sound bizarre to many, but this was the most powerful catalyst for what would soon transpire in my life. A…